We were taken a little off guard when we looked at his schedule and saw that he had scans on his appointment list for this week. I spoke with the nurse and PA who both agreed it must be a mistake because when on Ipi scans are not done till 3-4 weeks after the last infusion. They were going to cancel the scans but of course double checked with the doctor first. The doctor did indeed want the scans done. I was very confused and worried as to why he wanted these middle of treatment scans when that is not protocol. As a matter of fact, I could not find one person who had completed Ipi that had middle of treatment scans.
We saw the doctor this afternoon and we asked why the scans? He said since Steve's body acted so crazy back in November, he just wanted to be sure that the Ipi was working and that melanoma wasn't sitting there spreading like wildfire. Yay for a caring doctor that worries about these types of things even though it is not standard protocol.
The results? Great! The clavicular lymph node has shrunk by about 50% (or more - the final report was not ready) and also the few lung nodules he has shrank by 50% or more also! And BEST of all, NO NEW DISEASE!!! Yippie for Ipi :) I stole that from someone and I don't know who. But I like the sound of it!
Steve has his 3rd infusion of Ipi tonight. We are currently in the waiting room waiting to be called back. In 3 more weeks he will have the final infusion and then 3-4 weeks after that he will have more scans to see the end result of the Ipi treatment. I say 50% complete with treatment and tumors are 50% smaller, well that must mean that after the other 50% of treatment the tumors will be gone!!! (Yes, I know that is not how it works, but that is the plan!!)
Despite Steve's great news today, we have had a very depressing day. Back in September, Steven and I were invited to attend the Moon Shots announcement at MD Anderson. We met Brian Rose and his wife, Lupe. Steve was instantly inspired by Brian. Brian had the most positive outlook, they were about the same age, and Brian was fighting this disease head on. When Steve was in the hospital having some problems, Lupe would message me on Facebook to check on me. They were both just very inspiring to us both. This morning, Brian Rose passed away. We were sitting in the lobby waiting for Steve to get called back for his CT scan when we saw the news on Facebook. I was stunned. I pointed to the computer and we were both just silent. Both of our eyes instantly filled with tears. We have both battled the tears all day. RIP Brian.