Here is a bit about what has been going on with us for the past 3 months.....
In May, Steven and I were invited by GSK (Glasko Smith Kline) to their Philadelphia headquarters to attend a Bloggers Summit along with a few of our melanoma blogging peers. This was the first year for this event and I hope they continue it in the future. I took great pleasure in the fact that "Big Pharma" wanted to talk to bloggers, patients, caregivers, melanoma foundations, etc. about our experiences and our thoughts on what they could do to help "us". We talked in great detail with suggestions on what we felt was missing in the melanoma world in terms of awareness. While Steve and I were there, we also did a short on camera interview that GSK will use in the future for melanoma awareness. I feel like GSK will definitely do their part to help our community raise more awareness. Which avenue will they choose to use? I don't know and honestly it doesn't matter. I applaud their efforts to help battle the beast!!
|Steve and I outside GSK Philly offices|
|Mingling before lunch and the meeting|
|Melanoma Ribbon Cake|
|Blogger Summit Roll Call|
|Jamey Millar, VP GSK Oncology Business Unit|
|GSK Oncology Pledge|
|Group photo from the Bloggers Summit|
The Bloggers Summit also gave us the unique opportunity to meet several of our melanoma peers in person for the first time. These are many people that we have built relationships with over the last 2 1/2 years but have never been able to meet in person. What an incredible experience!!!
|Meeting my dear friend, Martha for the first time!|
|Drinks with Steve, Martha and Rich|
|TJ, Martha, Rich, Melanoma Research Alliance, Melanoma Research Foundation|
|Dinner - Rich, Martha, TJ, Me and Steve|
|Me and TJ|
|Me and Rich|
|Me and Martha....sad to say goodbye :(|
Wednesday, June 25th, Steve and I headed to MD Anderson for his 3 month results (he had scans that prior Sunday). We were so happy to hear he is still no evidence of disease!!! Steve had 2 biopsies while he was there. One on the back of his left arm and one on the right side of his upper back. Steve got the call on Friday that both of these were clear of melanoma. I believe they said one was atypical and the other was fine. So, good news there too! This was not our first time to meet Steve's new melanoma specialist, Dr. Patrick Hwu (he was on rounds several times while Steve was inpatient); however, this was our first time to meet with him in a regular clinical situation. Dr. Hwu was just as kind, compassionate and amazing as we remembered. Dr. Hwu seemed confident that Steve is a complete responder to Yervoy. Dr. Hwu is very highly regarded in melanoma research. He said that most people that are NED this long after completion of Yervoy go on to be NED for many, many, many years. He discussed the future of Steve's appointments. He would like to move from CT scans to PET scans. He talked about moving to 4 month visits once Steve is 2 years NED, then 6 month appointments when he is 5 years NED and eventually moving to annual appointments. While talking about all of these "future" accomplishments seems so surreal, the fact of the matter is, it COULD be our reality! Dr. Hwu seems confident, and he is one of the most knowledgeable melanoma professionals. So, his confidence gives me hope! Dr. Hwu also went into great detail with Steve about keeping his immune system healthy.....meditation, more sleep, less drinking, exercising, better diet, less stress, etc. Yervoy is immunotherapy. It basically restarts your immune system to allow your immune system to fight the melanoma. So, part of letting the Yervoy continue to work is by letting his immune system continue to work and be at it's best. It's definitely a work in progress ;)
|Back of left arm|
|Upper right back|
We will be back to see Dr. Hwu in September for the next 3 month scans. I hope you don't hear from me until then :) Although I do plan to try and blog more about melanoma awareness, issues, etc.
|We got to meet up with Kathy, Judy and Ken while at MD Anderson.....love them!!!|
|Steve and I celebrating NED (after my Zumba class!)|
Please pray, think positive thoughts, send your love, etc. to my dear friend Kara who is fighting for her life right now. Also, do the same for my friend Brandi who is fighting to get tumors under control in order to get into a trial.
|My sweet friend, Kara and her family|
|My dear friend, Brandi and her family|
***GSK reimbursed my travel and expenses to attend the GSK Melanoma Summit, however, I was not asked to promote GSK or its medicines. This post is voluntary, represents my own views and I was not paid to write it.***