Thursday, June 1, 2017

Still NED ~ Scan Graduation

It has been so long since I have updated! Steve had his 6 month scans last week at MD Anderson. The results came back that he is still NED (No Evidence of Disease)!  He has been NED for 32 months now! His doctor, Dr. Patrick Hwu said the likelihood at this point that the melanoma returns is very low.  He would like Steve to now move to annual scans.  I think I am having a harder time accepting that than Steve!  Steve is happy to only have to go once a year.  Understandably, he HATES going and also has to miss 2 days of work for scans/results every 6 months.  I know he needs to keep his RAD count down, but annual scans are just scary to me!  It is just an adjustment and I am sure all will be fine.

Steve went this week to his dermatologist, Dr. Duvic, at MD Anderson.  They have photos on file of all of his moles.  She noticed some change in pigmentation in one of his moles.  She did a punch biopsy on that and we will get the results probably sometime next week.  Crossing our fingers that it doesn't come back as a new primary (he had an unknown primary the first time).

Other than that, life is good!  Today was the last day of 9th grade for our oldest and the last day of 1st grade for our youngest.  Steve is in Las Vegas for a friends Bachelor party.  We're just living life!

11 comments:

  1. Hi,thx for sharing ur story. My mom is diagnose with stage 4 melanoma since january.we live in indonesia and the treatment for melanoma is very limited. I almost give up, but your blog give me hope❤️❤️❤️

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    1. I am sorry to hear about your mom. What treatments are they using in Indonesia? Keep the hope <3

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  2. Thanks. I needed to read a set of stories from someone who has been living with and winning against this. It's helped more than you can imagine - Now I have a bit of hope.
    - D

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    1. Stay strong and positive. I also have stage 4 mestastic melanoma. You're in my prayers❤️

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    2. Thank you. So very much.
      -D

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    3. I am so glad to give you some hope! So many people are living longer with stage 4 melanoma these days. Treatments only keep getting better! Hang in there! <3

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  3. Finally I've found an inspirational story! I also have stage 4 mestastic melanoma and recently began immunotherapy. My tumors have shrunk by 1/3 in 2 months. I pray for NED as Steve. It's a frightening journey and a lonely one.

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    1. i am so happy to hear your tumors shrank! That is excellent news! Steve is almost 4 years NED! Keep up the positive attitude! You've got this!

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  4. This is what my buds fighting: Melenoma Metastasis Stage 4 - Lungs + Spine cord compression. Surgery done for Spine cord Compression, Legs not working. Physiotherapy treatment On. Hospitalized from past 1 month. This cancer cell has become so maniac that its spreading very aggressively to other parts of the body.

    Treatment: Immunotherepy, ketyruda , Pembrolizumab 9 Dozes taken....Mix Response till last month. Now nothing seems working.

    New equivalent Medication Ordered - Nivolumab but looks we are running out of the time... hoping for miracle...please prey.

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  5. And interestingly he has two daughters...one is 5 and other is 2. Hows Steve doing now??

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    1. I am sorry to hear about your friend. I hope they are able to find a therapy that works for him. Steve is doing well. He is now a little over 5 years free of melanoma!

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